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Patient-Reported Health-Related Quality of Life, Anxiety and Depression in Patients with Inclusion Body Myositis : A Register-Based Cross-Sectional Study in Germany

DOI zum Zitieren der Version auf EPub Bayreuth: https://doi.org/10.15495/EPub_UBT_00007552
URN to cite this document: urn:nbn:de:bvb:703-epub-7552-3

Title data

Senn, Katja ; Thiele, Simone ; Kummer, Karsten ; Walter, Maggie C. ; Nagels, Klaus:
Patient-Reported Health-Related Quality of Life, Anxiety and Depression in Patients with Inclusion Body Myositis : A Register-Based Cross-Sectional Study in Germany.
In: Journal of Clinical Medicine. Vol. 12 (2023) Issue 15 . - 5051.
ISSN 2077-0383
DOI der Verlagsversion: https://doi.org/10.3390/jcm12155051

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Project financing: Deutsche Forschungsgemeinschaft
Friedrich-Baur-Foundation, Burgkunstadt within the ‘Ober- franken Förderprogramm’ (Upper Frankonia Program)
Open Access Publishing Fund of the University of Bayreuth

Abstract

Inclusion body myositis (IBM) is a rare neuromuscular disease and the most prevalent idiopathic inflammatory myopathy (IIM) in patients aged older than 50 years. A systematic review has shown that no clear-cut conclusions can be drawn about the health-related quality of life (HRQoL) and mental health in IBM. We aimed to assess the HRQoL and mental health, to explore associated disease-related and socioeconomic factors as well as the utilization of psychological support in German IBM patients. This cross-sectional study included 82 patients registered in the German IBM patient registry. Patients had completed a survey battery including the EQ-5D-5L, the Individualized Neuromuscular Quality of Life (INQoL) and the Hospital Anxiety and Depression Scale German version (HADS-D). The physical HRQoL dimension was suggested to be most relevant. Most impaired life domains of HRQoL were mobility, independence, and activities. We identified significant differences in the total INQoL score for the degree of disability and care level as well as in depression for the degree of disability (p < 0.05), respectively. Most patients indicated no symptoms of anxiety (64.6%) and depression (62.2%). A more need-oriented psychological support in German IBM patients, reporting doubtful or definite anxiety or depression, could be suggested.

Further data

Item Type: Article in a journal
Keywords: anxiety; depression; quality of life; patient-reported outcome measures; inclusion body myositis
DDC Subjects: 600 Technology, medicine, applied sciences > 610 Medicine and health
Institutions of the University: Faculties
Faculties > Faculty of Law, Business and Economics
Faculties > Faculty of Law, Business and Economics > Chair Healthcare Management and Research
Faculties > Faculty of Law, Business and Economics > Chair Healthcare Management and Research > Chair Healthcare Management and Research - Univ.-Prof. Dr. Klaus Nagels
Language: English
Originates at UBT: Yes
URN: urn:nbn:de:bvb:703-epub-7552-3
Date Deposited: 14 Mar 2024 07:16
Last Modified: 14 Mar 2024 07:17
URI: https://epub.uni-bayreuth.de/id/eprint/7552

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